January 20, 2011

Well, we have had a pretty uneventful week.  Cole has been doing pretty well.  His eyes are giving him some problems at this time.  Seems like the past few mornings he has had some really red eyes which in turn makes his nose run and many oral secretions.  Any suggestions?  We use Restasis and Lacrilube to help keep his eyes "moistened" since he is unable to blink or close his eyes all the way.  I would love to know what other SMA children are using for their eyes if they have similar situations.  We decided this week we are going to watch the Free Willy series.........I thought of you right away Casey O'Neill.!!  Do you still love those movies?  Extremely cold here this past week, we don't leave the house if we don't have to!!  Temp at this time is -17 degrees, yes, that is a NEGATIVE 17!!